So many have asked about taking us meals and I wanted to go ahead and share that my church family has set up a Take-Them-a-Meal Schedule Here. Password is Arthur. Right now, Myers sometimes eats late when he arrives home from being at the hospital all day. This week my parents are at my house taking care of Lil and sometimes traveling here, so the meal support now is a huge help. Whenever we get home, I know it will be a while 'till I'm back on top of things again, so meals will be a blessing as we settle back in (oh, hasten the day...).
But really, the care, the prayers for Arthur - we are quite honestly overwhelmed with it all and we are grateful.
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| Lilian loves helping her brother with his "soothie" pacifier (these are the kind you can feel them sucking on your finger) |
To answer a question about breast-feeding...I only had to keep his tummy empty for the anesthesia he needed while getting the PICC in his jugular. I was able to feed him directly after it was done. He is eating well and gaining weight just as he should be. He's 8lbs 5 oz now (was 7lbs 9oz at birth).
About branching out to other hospitals...for now, we feel they are doing everything they can to get to the bottom of this and they are not stumped at this point. If we need to do the bone marrow biopsy, we will get answers...so we have not exhausted our diagnostic options. I just hope we don't need to go down that road...
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| She loves holding her little brother. |
One thing we forgot to mention on the blog earlier today, which to me is huge - is that this time around, my third pregnancy, there are even MORE of my antibodies, so it does make some sense that his neutrophils are having a tough time showing up. My HOPE is that it is taking a little while for all these treatments to "work" because he has so many antibodies, way more than Gwen, who responded well to the same treatments. All of these antiboides only can live so long...so if this is what it is...it will be all gone and history once my antibodies are outta there. So again, I say, I'm hoping and praying it is really, truly, simply just Autoimmune Neutropenia.
And that's all for now. I'm needing sleep...I'm sure there were other questions -I'm sorry to not answer them all. It's hard to reply to everyone...so I apologize if I've not replied to a note or text message...I do read them all and try to get to everyone.
In other news, it was a wonderful visit with my Lillian today. My parents got to meet their grandson. I was out in sunlight for the first time in over a week, playing with Lil in the courtyard here. Lillian made pictures for my wall - they make this place much more cheerful. She is being SO well cared for between my friends (thank you Bethany and Del!) and now my parents... She is hanging in there...but she wants me home as bad as I want to be there.
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| Lillian and I drew pictures today. (This is the best crayon holder ever, recognize this Elisa?) |
One final thing...wanna do a few "shout-out" thank yous! Thank you to Debbie for the delicious treats, to Christina for the adorable giraffe which he loves, thank you "Rosetta Stoners" for the flowers and to my Sisters by Heart, as well - the flowers really do brighten up this place! Thank you to Bethany and Alisha (and Silas) for the hospital care bag (which incidentally, Elizabeth told Lillian about - first thing Lillian asked for today was some chocolate she heard about from Elizabeth...it was pretty funny). Thank you to our church family for the meals for Sarah and Becca/my parents and Lillian this week and thank you Adina and Kendra for setting up the meal page.
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| Grammy and Papaw enjoyed meeting their grandson for the first time. |
I totally did recognize it-- even before I saw your note about it and I got all teary-eyed... Remember how she yelled and screamed and wouldn't open presents? *waterysmile* Cute little stinker punkin'... Boy, do I miss her :)
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