Next up, Bone Marrow Biopsy... and more wait.

Zero neutrophils today. Platelets are down a little, to 48 (thankfully not down into the 20-30 range, which at that point he would need to be given platelets). 

Looks like bone marrow biopsy is plan. His doctor is going to try to see if she can get it on the schedule tomorrow. If not tomorrow then Tuesday. Then it will take several days for all results. More days of waiting...

He will be under anesthesia for the biopsy and it will be pretty quick. He shouldn't even know it happened and since his bones are soft it shouldn't cause any pain later. 

To answer some questions: I think the HOPE with this biopsy is to confirm the diagnosis of Alloimmune Neutropenia (AIN). But, if that does not happen, then I suppose we have to figure out what is going on - and I'm really not sure if they have other theories yet. I honesty haven't asked them yet, what other possible diagnosis would be on the table if it's not AIN - I just can't do it - I can't begin to open my mind to hearing the other things he might have. 

Content at this moment, so mommy can be bloggin...he is hooked up to one of his antibiotics in his metal crib. He is content there or in his little rocker/sleeper thing, which is good. Often times I'm holding him while they hook him up...So at least they are flexible and he can be anywhere while he gets pumped with drugs. A little later this evening he'll get his GCSF shot in his little thigh and another antibiotic. I hate those machines that pump his meds (see above his head) - the alarm bell is so annoying (I can turn it off but if the nurse doesn't come then it goes off again...) and you have to lug it around if you want to move him...but whatever it takes for him to get well.  And wouldn't you know, it just went off and startled him...but he is still asleep for now. Hospital life is not really helpful for letting a sleeping baby sleep - but he's actually slept through vitals before so it's not too bad and the alarm seems to only really tick Myers and I off.

Tomorrow's another day - maybe his CBC will surprise us - at this point I'm just hoping his platelets go up or return to normal since that is the final straw that is throwing the doctors for a loop - and why they want to go ahead and nail down confirmation on the AIN diagnosis. I don't want him to end up needing treatment for that as well (giving him platelets)...it will feel like the wheels are starting to come off if that happens. 

One more weird thing the doctor told me - he has lymphocytes showing up in his blood. Apparently for several days. Apparently they should only be there if he has a viral infection. He seems completely fine of any infection...so go figure. 

Lil, Myers and my mom visited today. They left a little while ago. Lil is getting used to this routine of seeing me every two-three days...she is doing okay. I'm glad her days are so full between school, dance class, family visiting (taking care of her) and play-dates...and that for her, time probably is flying by. 

I relish the thought of HOW GOOD it will feel when this is behind us...but of course, I want this behind us in the "right way" with this being over-gone-out of his life... something never to be thought of again.

Me and my little guy.

Bright eyed this morning.

 P.S. Nurse just came in -- one I've had before, to take care of his meds because my nurse is busy. She saw the flowers and asked if anyone had told me you really aren't supposed to have fresh flowers in the room if you are neutropenic. She was surprised no one told me - and she said she didn't know exactly what it was about the flowers but it was the hospital rule (she was very kind about it and felt really bad). 

Ironically, I had just taken a photo of them and was going to post a picture and share some of the lovely things in my room sent to us from family and friends... and now well, sadly my flowers are gone. Oh well - they are right outside my room and I can see them at the nurses desk when I go by. I guess Myers will take them home tomorrow - don't want to put my little guy at any risk... 

What my window looked like about 10 mins ago.

And there goes the alarm again...