IVIg Ready

He did just fine getting his central line in his jugular (we propose it be known as "the vampire straw"). Thank God. We are so glad that is behind us and he is back with us. He was under anesthesia and intubated. It is horrid to see on his neck but this is what he needs for his IVIg. On the "good" side if you want to try to find a silver lining he does not need the iv in his head or hand or anywhere now, his antibiotics can go through the central line. Furthermore any blood we need can be drawn from this new line - so no more heel sticks or blood draws from his wrists.

The plan is to start the IVIg tomorrow morning. It takes 6-8 hours to administer (this is because they watch carefully to make sure there are no complications/reactions and because of the nature of it, it is viscous).

Immunology also got on board and they ordered two tests to be done (this is in case we need to do differential diagnosis, we need to get the blood now before the IVIg because the IVIg is a pooled blood product and it will muddle up his blood for any tests we may want done). They will test for flow cytometry and a immunoglobulin count.

Also today we were informed his platelet count is down a little. This could be due to the infection, could be a big scary new issue...it is being watched

Thankfully, his infection at his navel is finally looking a little better.

Also we have to move one floor down as our current room doesn't have vitals monitor. Bright an early next morning I'll be packing all our junk and relocating.

Arthur has a lot of quiet alert time in the evenings. We are having a great time just looking at him and he back at us while we get this post up. We love gazing back at him as he gazes into our eyes and all around...taking in the world. Love this little guy so much...

Looking at Daddy just before he went to get his central line in his jugular...oh how hard it was to let him go even as it was such a small procedure really and how much it brought back memories of our sweet little Gwen when we she had her heart surgery.